Living with Parkinson’s in the UK: Daily Life, Care and Independence

Parkinson’s disease is a chronic and slowly progressing neurological disorder that causes many symptoms, such as tremors and movement stiffness. In the UK, 153,000 people are living with Parkinson’s. 

Although there is no permanent cure for the disease, Parkinson’s symptoms can be effectively managed with medication, therapies, and consistent support so that patients can have a better quality of life.

Patients with Parkinson’s need supportive care to manage their medications and adapt daily routines. In this guide, we cover the key aspects of living with Parkinson’s, symptom management, and care and support options in the UK.

Signs of Parkinson’s Disease and How They Affect Daily Life

As Parkinson’s is a progressive neurological disorder, the symptoms start slowly, but continue to affect movements over time. Typical signs and symptoms of Parkinson’s disease include:

• Tremors: Tremors are often the first symptoms of Parkinson’s. More commonly, they occur in the hands and feet, but some people have tremors in their jaw or tongue.
• Muscle rigidity: Stiffness in the neck, hands, feet, or back stops people with Parkinson’s from moving freely.
• Anxiety and depression: Parkinson’s takes its toll on emotional health, and almost half of Parkinson’s patients have depression and anxiety. It could also be due to the chemical changes in the brain because of the disease.

Other symptoms like issues with bladder control, constipation, restless legs, and low blood pressure may also occur in Parkinson’s patients. Many also have sleep difficulties, mood disturbances, and irritability. 

The symptoms vary from one person to another. Patients who have Parkinson’s with dementia may experience significant cognitive decline within a few years of showing the motor symptoms. Patients with Parkinson’s, as well as their caregivers and families, must take care of their mental well-being.

Emotional Wellbeing and Mental Health

Living with Parkinson’s, knowing that there is no cure and symptoms will only worsen over time, can affect the mental health of patients. Further, chemical changes in their brain further impact cognitive health, sleep, and mood. Often, patients with Parkinson’s have low mood or withdraw socially. 

Parkinson’s disease has over 40 symptoms, and early diagnosis is often challenging. Counsellors can help patients to develop coping strategies, and support groups can share their experiences to make sure that the patient doesn’t feel alone. 

Families taking care of patients with Parkinson’s at home also go through emotional distress. The patients may need continuous and supportive care throughout their lifetime. In the next section, let’s explore how people with Parkinson’s can continue to stay independent. 

How to Manage Parkinson’s Symptoms and Stay Independent

Medication helps to reduce dopamine deficiency, and therefore, most medications include a combination of Levodopa with others that ease motor symptoms. Finding an appropriate combination of medications for the patient is essential, with adjustments required over time as symptoms change. 

Therapy is important for allowing patients with Parkinson’s to be independent. Physiotherapy is aimed at balance and movement. Speech and language therapy would be necessary for communication and control of swallowing. Some people may require occupational therapy to cope with daily living. 

Active living is encouraged among persons with Parkinson’s to minimise stiffness and enhance mood. Social connectivity, family support, and professional assistance can lead to a remarkable difference in quality of life.

Parkinson’s Care and Support Options in the UK

In the UK, Parkinson’s UK is a well-known charity that offers advice, connections with local support groups, and helplines for patients with Parkinson’s and their families. They help find services closer to the patient for better care and support. 

Depending on the severity of the condition, patients with Parkinson’s may need continuous home support. Some may be independent on their own with occasional check-ins, while some may require full-time live-in care. Families also choose care homes to take care of their loved ones with Parkinson’s for safe and round-the-clock support. 

NHS Services for People with Parkinson’s

The NHS offers diagnosis, specialist treatment, and ongoing care for living with Parkinson’s. Neurologists, therapists, and trained nurses come together to offer treatment and care for Parkinson’s patients. They review patients with Parkinson’s regularly, as each one needs a customised treatment approach. 

The NHS continuing healthcare package is available free of charge on an ongoing basis outside of the hospital. It is offered based on the Parkinson’s assessment, and depending on the condition of the patient, they can choose between residential or at-home care. 

While the NHS strives to offer free-of-charge ongoing care for Parkinson’s, it’s not easily accessible to everyone due to limited awareness, variations in assessment, eligibility criteria, and bureaucracy. Beyond the NHS, families and patients with Parkinson’s can get customised and expert supportive care with dedicated health services. 

How Secure Healthcare Solutions Can Help with Parkinson’s Care

Secure Healthcare Solutions offers tailored support to people with Parkinson’s. Experts create personalised care plans that respect individual preferences.

Patients can get assistance for daily tasks, mobility, support with rehabilitation therapies, and negotiations with health professionals. Safety is the primary concern; every effort is made to allow patients to remain as independent as possible. Professionals work with families and patients to draw up a care plan addressing the concerns of all involved parties, including patients, caregivers, and families. It helps in maintaining dignity and quality of life in the face of changing symptoms.

If you are seeking local supportive Parkinson’s care in Wolverhampton, Secure Healthcare can help with trained caregivers and health professionals. 

FAQs

1. Can you drive with Parkinson’s?

Driving ability with Parkinson’s depends on the patient’s symptoms. Many people continue to drive during the early stages of the disease as long as they meet the local driving requirements. However, you must inform DVLA about your diagnosis and follow their guidance. Your doctor can assess your fitness to drive. 

2. What benefits can I claim with Parkinson’s disease in the UK?

Multiple benefits like Personal Independence Payment (PIP), Employment and Support Allowance (ESA), or Statutory Sick Pay are available for patients with Parkinson’s. However, the eligibility depends on care needs, health status, and assessment. Diagnosis alone doesn’t qualify you for these benefits. 

3. Is Parkinson’s disease a disability?

Yes, under the UK equality law, Parkinson’s is recognised as a disability if the symptoms are substantial and cause a long-term impact on daily activities. This recognition supports access to benefits, legal protections, and workplace adjustments.